The Life Of 3 Children Who Are Battling Cancer | Raining In My Heart | Real Families

smiling that, two weeks later, Chloe is suffering? Due to the side effects of her treatment, her liver is dangerously inflamed, the therapy meant to save her

life

could be killing her. You see your child uncomfortable and you can see the

real

effects of what we are doing here. Yes, by trying to kill the

cancer

that you are, you are filling them with toxicity and you know you see the effects that she is actually a very happy girl and so on the days that she is not, she hits you like father. Your daughter is going through something you would never imagine.

She doesn't come and tells me I'm always thinking. I'm always a little worried about her because she's my sister. I don't want anything to happen to her. I don't like to see my sister in pain. Of course, I don't like it. Seeing her cry because it makes me cry today. Sofie will receive her bone marrow transplant, a new donor blood immune system that will prepare her for genetically modified T cells in a few weeks. moment when the new bone marrow enters her blood and reaches her lungs, Sofie can smell and taste it on her breath, she uses cherry drops to mask the taste, you still taste it to let it all pass, so this bag will take twenty minutes and then the next one. bag it will be another twenty minutes when you have the bone marrow transplant, then it will be day zero and then I think it will be four thirty-five days later, you will be well enough to go home and then have home isolation.

Now I can smell the cherry. drop, get candy to pick up I know these could be good days on very bad days and there will be days when she just wants to sleep and he just holds her, holds her and she just drifts in and out of sleep. You can smell it? Which is my? vehicle in the garden whose insect driver is Hello Kitty posing as Chloe. She has been fighting an enlarged liver but things finally seem to be improving and for the first time in almost two weeks she is disconnected from the pumps that keep her alive. high five for that on your bike, move on with the bike in a minute, okay, Charles and the socks brought them here, it seems like yesterday we turned a corner where everything seems to go back to normal, good girl, It's

real

ly nice to have it free. of these for 24 hours she will go for a walk with all the pumps and stuff, but it's not the same as feeling free unplugged from a machine, she'll hold my finger, yeah, a little wobbly, that's because you've been walking a lot, you should shake it a little.

Do a little of this to get rid of the wobbles. Shake it up. Shake it up. to want to ride a bike and know that the nurses are going to come and give them a sticker to put on her badge, we just stop and you take one off of her and put it there on her badge the quicker we get her back . To get some normalcy to the things we can handle at home, we know we're getting closer to her coming out and we'll also see energetic pet Fabian escape in a minute, which is really nice to see him overcome some of the things for the ones he's been through that are really encouraging and inspiring, it's inspiring, he added, like learning some things from my adult, being in the hospital and going through things that none of his friends will ever understand.

I really think she has definitely made him a stronger person when I have my sister. cells and so give them the nickname TT cells, which means they're tight T cells, they're just like the good cells fight the bad cells and destroy them and then as soon as I like the story, I won't be you anymore. , which is a good thing because I have to say that not being a coffin and then being dead would be horrible, that's why I called him TT, mull over some name, actually we still have a lot of hope that he'll be okay, he said.

I really want to grow up and have a wife, a house and a car, so he's positive about his future, which is lovely, let's see how high you can go. It's okay, every day is very valuable. You know, you think. I wouldn't, I wouldn't want to remember that day or that week and you know and you think, oh, if I could just let that time dry up again. Chloe is doing much better too. The family is at London Zoo for The day in a short respite from treatment before she starts her radiotherapy it's that fun darling let's go see those penguins.

Now they like my face. We are trying to get back to normal before Chloe got sick, but of course, it will never be normal. so they don't say she doesn't have

cancer

, which well, it's not just like BAM and look, the treatment Chloe doesn't have cancer, it's like they have to wait again before they can say the shuttle had cancer, oh that's it a great song ready with Chloe talking about having Holly not always very good my dad always faced me home is not a house it's us like my family at that time New York is a house like that or that big hotel or that school schedule no It's over So I'll make a nice breakfast real quick.

What's it like to be in the same room for weeks? So, like a caged animal, it's like living in your living room or your bedroom. You get a little bored, even though it's the 35th and today. I'm going to have a bone marrow aspirate, which means it's the first time I've left my room in how long can I move through the air in eight weeks and you can see the people and I'll tell you the people and what's going on in your city. The cells in mine are not diving, apparently we are destined to return home in about a week, according to my chart, which I think ticking, you never know, could happen if I never sigh, come on like Sophie Fabian, has to too Have a bone marrow aspirate a critical test that will find out if there are still leukemic cells in your body.

This is the one that will tell if the gene therapy has been successful or not. It's been a pretty anxious time, you know, we're really looking forward to having it. Really good news and the T cells have done their job, so we have to see now, it's just a regular trip to being cool on the street, but it's one that's really going to matter, oh honey, I'd sleep on the way here. You eventually make sure you know how to say that while Fabian is unconscious, a hollow needle is inserted into the bone in his head and a small amount of bone marrow is removed.

The sample takes several days to analyze. An anxious wait for the entire Fabian family and the My family has come to see Professor Ambrosia to get the latest results from him and find out if Casia's modified T cells are working. I would shoot a little more than McDonald's. I'll try to go to the Ritz, okay, so I think overall I think I'm very happy, good news from the latest bone marrows, okay, yeah, I would be a little cautious about it, but we can detect those special immune cells that we create at from cassia and then the fact that we can see them in the peripheral blood means that they have expanded, which is fantastic as we say, so the question now is how long are these T cells going to last and are they going to continue to look for the leukemia and I really know that it is very difficult for you, but I guess only time will tell.

I'll tell you. Thank you so much. It seems that the T cells have had an effect. You know, it's very early but it's positive. Yes. A Swedish house and all he told me last night was that he didn't do it. I don't want to die. I think I was talking to him about how not everyone lives to be old and some people just don't and he just said, "Well, I don't want it to be like that, I do." live, I'm glad I don't have to tell him that, hey, not now because that's what it really came down to, wasn't it?

How about we tip over and then drop the candy? I don't have to tell him. him, that was obviously my fear. Chloe began her therapy with Amina, a six-month treatment with antibodies aimed at boosting her immune system to fight the cancer. You will be a tooth fairy. He also had a test called mi BG scan to see if there are any traces of cancer left, let's just talk about MIB g scan. I've seen this little lesion on the sternum and on my most recent BG we can't see it so that's really good so the most recent scan is normal which is really good because that was the point we were hoping to get to Brittany .

Now it's just a matter of doing everything we can or know to prevent it from coming back and the things that work for that are demonized therapies that I know I said it came back pretty high and that's why we've been particularly up on mummies a little bit longer. strong that Debby a little behind Alaska yes, well, I think the unfortunate anxiety is completely normal, reasonable because we know that Chloe has an extremely difficult disease and that it is very difficult to treat and that there is a high risk of it coming back. Yes, Chloe has gone into complete remission and I think we are now looking at the brighter side - a 50% chance of that happening.

I'm not coming back yeah, I'll take it, I'll take it to the bank now yeah, after Chloe got her

life

back, you know, we couldn't be more grateful, we got the news that there are nine new years, the best, I'm a staff. which was moving and very emotional. I'm proud of her because she has strong size, even stronger than me. I think she does, she's a fighter and she's a big strong girl now, yeah, that's why I constantly wonder how you could get this back at any time. you have to put it aside and you do every little thing, especially where possible, to make it a little flower card, so I had them, I don't know what I've done with them, this is the glitter for the tables I make and set These mom, baby, I hope it should go well today.

Namie is coming and some of your friends from school. I give you the best farewell. You really deserve those baby cakes, don't you, girl. Sophie's bone marrow transplant failed her blood counts never recovered her body gave up my mind didn't make sense what had happened for ten years of her life her body just couldn't take it anymore Sophie always wanted to help her

children

anything too much advanced for medications, so I don't regret participating in the clinical trial, it was Sophie's choice. Unfortunately, the bone marrow didn't work, so she never had the chance to have the modified cells in memory of Sophie Jemima Ryan Palmer, she would love it. us to do this and what we all say, she was a great kid, proud to be called a mummy, although Sofie never received the modified T cells, other

children

in the professor's study I participated in are still cancer free, which shows that immunotherapy holds great promise for Unfortunately, in Fabián's case, the T cells eventually stopped working and he passed away last November, but as one of the pioneers of the treatment, he brought the end of cancer one step closer in February.

Chloe started a new cycle of chemotherapy, but her family is still optimistic that she will beat her cancer. Immunotherapy is not my miracle cure, but it is what I hope will lead to some kind of cure that will kill the cancer. Let's just keep our fingers crossed that my little girl gets what she deserves, which is a long life.