Living with Williams Syndrome (A Condition that Makes You Friendly)

We have this camera where we can see each other right there What do you think when you look happy I love me I don't know why but you do hear your sister laugh yes yes why do you think she's laughing she's laughing at me Victoria Does she ever get on your nerves? Yes, sisters do. He still loved her. When she gets on your nerves. Some ties. She has always been unable to keep a secret. She can't lie. I am not a liar. She tells a lie and she just has to tell you the truth and she can't keep a secret.

Why can't you lie? Because I know she does. She knows better and, if she knows better, she will tell you something is wrong. If you could tell the world anything, anything you wanted them to know, what would you say? Well, it's you depressed. Find someone you love and give them a hug that doesn't make you feel much better. She used to come running. to anyone and I want to give them a hug, uh, and say, I'm Alexandra and I have Williams

syndrome

, but we had to teach her in death that it's just a bed, no, yeah, this, you're not supposed to do that. because not everyone likes to be approached and hugged, eh yeah, I love hugging people, I don't know why I do it, it's a good way to express to someone that you care, why did you want to hug? to all? a very nice girl and I would be, I don't have to be more careful, you are a cute little girl, it is cute, but we have had a teacher that when a grown woman comes and hugs you randomly, it is not always so cute. and people don't like that, but she learns very quickly, it's my job, sometimes I smile too much, why do you smile so much?

I don't know, it's a good thing, yeah, it's a good thing, I hope I smile too much too. My husband joined the Navy and Tom moved to Virginia, so we still see each other, but not as often as we did. If you had one wish, what would it be? Why do you want me to live with my mom? And sometimes I feel like I'm just I went there, I literally do everything together, we go shopping together, we go to the supermarket together, we watch TV together, so it's hard to learn to do those things on your own, she's been there for me for a long time. time and I am very happy that he did it.

Don't cry Victoria, you met here, that was so sweet, why is your sister sharing that means so much to you? I don't know, I'm not sure I've been told before Do you have any dreams? I hope it happens no I mean I would love to hear from my grandmother who passed away she passed away two years ago so it's something you think about often yeah I miss her every day so I'm sorry but you passed so yeah it was my mom's mom so I know it can be hard to lose someone yeah but I'm happy to be here with you today thank you you're welcome and I'm happy that you feel comfortable enough with me to share your emotions and tell me.

Yo, how do you feel, thank you, it means a lot to me that we are good friends. Now she is very emotional and she is very dominated by emotions. Have you lost your family member? I have lost people I love and family members. and even some friends that is not good no and I felt sad just like you expressed that you felt sad when your grandmother passed away so we have experienced the same emotion how old are you? I'm thirty. Wow, cool mm-hmm, can I ask you? a question, do you feel comforted knowing that I felt the same as you felt?

Yes, why does that give you comfort? It's nice to know you're not alone. Well, how do you like feeling upset? It's difficult, free people need to know that. They should never be kids with Williams

syndrome

because it will hurt a lot. Have you ever experienced that I was young? Wait. I used to go to Rove school, but they used to bully me there because of it. Do you sometimes feel alone? Yes, what can others do? so you don't feel alone, how do I feel, you should call me. So, do you wish more people would call you?

Sometimes when I feel alone. I really want you to call me. Did you end up going to a different school? I was in house. I studied after not going to high school. Do you like having Williams syndrome? I wish I was the white fist because sometimes I wish I could be normal, but I'm not. You mentioned that sometimes you think about being different and I completely understand that. you were saying but I want you to know that I think you are great just the way you are thanks you're welcome mm-hmm and I'm glad you are the way you are because I've experienced so much joy meeting you today thank you I'm going to have a big smile on my face today oh thank you you're welcome I think one of the best things is to make a new friend and share a smile and be happy together and I can tell you that being here with you today has made me very happy thank you welcome you are just a nice and fun person to be with you are welcome , you wish everyone was super positive, yeah, you don't need negative things all the time, don't you.

My family taught me to know not to talk to people who are me, how do you know I felt what they feel if it's not good then I won't even talk to him you're failing it's like you're feeling the feelings? What does that mean? You can feel my feelings. I don't know, but I think you make me cry. Can you tell if your sisters are happy tears or sad tears? How do you know that the happy feeling inside you

makes

me happy? and the fact that you are happy

makes

me happy, yes this is like an endless cycle of happiness, we just sit here and smile and our smiles will only get lighter because we are feeding off each other's happiness.

For the cycle of happiness, where do you think you will be in ten years? Do you think it's OK? Oh yes, I am. Why do you want to live with your mother? I rarely live with my mom. It would be about me because I hate being one. About me, what is the most difficult thing about being alone? It's not good when people haven't decided what anxiety is. It's hard sometimes it makes you sick. Anxiety can make me sick sometimes too. So what are the things that make you feel anxious when you think too much? things that are not true then it begins makes me feel go people talk to me you feel like you are connected to other people yes I knew it you prefer to be alone or with people with people you have plans for what happens when your mother is older she will, now We have planned for her to come live with me, it is something that my husband already knows and he loves her to death and we cannot, we cannot wait for her to come to be with us.

She would take her right now if she could, but my mom wouldn't abandon her. It would feel good to go with my sister. We think she will be like old times. We used to have more young people. How would you like to be looked at? uh an adult who has a disability, people with Williams syndrome, is missing a chromosome 7, it's a type of Down syndrome, have you met anyone with Down syndrome before me? So, it's the same with them, but it's more different, instead of having an extra chromosome. "I'm just missing one. Yeah, how would you describe Williams syndrome?

I don't know. I feel like all your Williams and your friends that I've ever met are very innocent and they're all very happy and then it's like despite them ". They've grown up, they're just these little innocent souls, would you say that's right? Are you an innocent soul? Yeah, what's it like to be innocent? Know? Innocent means what do you think of me. MMM. Does your sister make you laugh a lot? Yeah when she doesn't even try to make me laugh what makes you laugh a lot when people make faces at me I start laughing are you telling me funny faces make you laugh yeah so you don't get hurt I'm really committed to this funny faces we talk every day yes, we do what are you talking about?

Sometimes we don't talk at all. Sometimes she just watches me make breakfast over FaceTime. Why do you like to look at your sister? Because she we love to look at each other. Others anyway because as if you were there mm-hmm