Disney star Cameron Boyce’s parents on last time they saw their son | ABC News

o ABC News exclusive now with the

parents

of the beloved Disney

star

, voice of Cameron, voice of Victor and Libby speaking for the first

time

since the death of

their

beloved son

last

month, talking about the

last

time

they

saw him, some of

their

special memories and how

they

will do so. keep his legacy alive the night he passed away we went out to dinner with them just hours before we were texting that night we were texting about the Lakers we were texting back and forth until 12:30 and somewhere moment between the last text he sent me in the morning he left it's not a cliché to say you never know you never know who you never know it's not a cliché to say you know I used to know when it's someone else you know you always feel bad but until God really hits you You just can't understand it, just hours after his father took these photos of a smiling Cameron Boyce, the 20-year-old was found unconscious in his Los Angeles home and died suddenly last month in his sleep Due to a seizure that was the result of epilepsy, a neurological disorder that affects nearly 3 and a half million Americans, Cameron had his first seizure at age 16 and a half and then, until he had his second, he was not considered I had epilepsy and that was when I was 17 years old.

On the 18th he only had five seizures and the fifth is the one from which he died. Is he receiving treatment? Yeah, well, he was on medication for one, but we also had this thing where they attached his head and they had this contraption. in the attempt to capture the brain activity they never showed they tried to induce him to stop with strobe lights and different methods, they never succeeded and he only had seizures while he was sleeping, he never had one while awake, every time we had a seizure he would bite. biting his tongue or biting his lip, he would have no memory of the seizure and obviously if I had ever thought he might die from a seizure I would never have let him out of my sight which would have been terrible for him, so we thought.

Because he hadn't had one for 13 months before last for almost a decade, Cameron was a fixture on family television screens around the world. At just 12 years old, he landed his breakout role on the hit Disney Channel show. Jessie seems a little crazy. Isn't he the

star

of the very popular Descendants franchise that showcases his many talents as an actor? It was not the right time and the dancer had a son. Was she growing up? What kind of kid was Cameron? He was amazing. always extremely wise, extremely thoughtful, incredibly athletic, a dancer from the moment he was born, and the kindest, sweetest human being you could ever meet.

He used to tell me: he shares your wisdom, mom, he shares your wisdom with me, who says that, who says that, he is a The boy and I often described him as an old soul. Cameron believed deeply in helping others by combining acting with activism. His family is now continuing the work he started with the Cameron Boys Foundation and the Cameron Boys Foundation will do a lot of things for epilepsy to end guns. violence over the water crisis those are the areas I was really very focused on what you leave should be bigger than you know I will never be able to fill my son's shoes even though my foot is bigger than his mm-hmm but we're going to try to continue his legacy as best we can because it's too important to just let him die.

Usually a son says that about his father exactly everything is backwards, everything is backwards and that's why it's so strange to me that I'm not supposed to do it. survive myself. I'm not supposed to undo his estate. I'm getting, you know, letters about the state of Cameron Voice, which is just that every time I read it or see it or something, it blows me away in your quiet moments and you think. of his son, what is the first thing that comes to mind? About a month ago he came to visit and I was so happy to see him give him a big hug and it's great that here is my 20 year old son who just drove in this car from home and he's coming to visit me and I'm thinking this is how it's going to be. cool so that's my favorite memory right now because that was the last time I saw him like he was an adult and he did his Hey guys, it's the Cameron guys here on The Descendants coming out on the carpet right now.

Do you have a favorite performance of his? It's not a performance, but when he lived in New York for four months and it was snowing and he was just dancing. And he just did a pirouette that was perfect and left a mark in the snow and I love that because it's him, it's the sunlight and the shoes, but he said crazy things, yeah, go ahead, but we had a good night last night. We were with him. at dinner she told me we asked her about her house she had just bought a house and she said well how was the house this was the night there was another aftershock of the earthquake and we were in the restaurant and we were rocking in the restaurant in the patio we had just had a retort and then she asked him how the house was and he said my house is the epicenter of everything that's cool, she made it sound like he was at the Oreo opera festival all the time he was a fool, he was, he was. a total idiot, said crazy things all the time, I just thought he was cool, the epicenter of everything that's cool, and says with a smile that they are very proud of their son and rightly so, they established the Cameron Boys Foundation in his honor , is launching his first Friday morning show is called Wielding Peace to Help Fight Gun Violence, so this is something that Cameron actually created and he had been working on this project before his passing and he really wanted to share it.

The foundation will also raise awareness about epilepsy and I saw your reaction when the mother said it was 17 when Libby said that her first seizure and that you don't get diagnosed with epilepsy until you have a second right and the fact that he was taking his medication lately and that she felt safe. That first month they wanted to emphasize this: very strange how she died, it is extremely strange, but she thought well, since it happens while she sleeps, she won't hit her head, it could be so the normal fears of having an epileptic seizure during the day when " "You're walking exactly," he said, if he'd known he would have kept him by his side the whole time, he said, which wouldn't have been fun.

No, I just have to say that not only is Cameron an inspiration, but his

parents

are too watching this. They are sincere and Robin, her interview with them is fair, they should be praised for what they are doing for her son. Wow, it was hard for them. You know, it's been about a month since he passed away and he has a teenage sister who, yeah Go on Instagram and read what he wrote after he passed away and I asked the parents what their secret sauce is because both of their kids are extraordinary at thinking about the others and you can see more of the interview tonight on Nightline and you can understand.

This is the legacy that she continues because of her grandmother, what she did in the civil rights movement. Wow, then you understand better, but what you leave should be bigger than you, but what you leave should be bigger than you, that was true. Hello everyone. George Stephanopoulos here, thank you for visiting the ABC News YouTube channel. For more video highlights from the show and live event coverage, click right here to subscribe to our channel and don't forget to download the ABC News app. for breaking

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